Life comes at you with everything it's got; constantly throwing curve balls to catch you off guard. Things have been going so smoothly for so long that we were caught off guard so bad that we were hit right in the gut.
Drake went for his MRI this morning to see if his cerebral nerve was inhibiting him from swallowing. We knew this was just going to be routine, because he was taking his bottles so well. This evening, I asked the nurse to see if the doctor had the official results as it was getting close to shift change. When she said the doctor would be in shortly to discuss them with us, Annie immediately knew something was wrong. If everything was ok, he would have just told the nurse over the phone. When the doctor entered the room bringing a chair with him, I knew I should prepare myself for a drastic swing in our momentum. It seemed like an eternity before he said a word while he pulled up the images on the computer. He said the results of what they went in there for were normal; however, there has been a substantial change in the images they saw at the end of June. Drake has something called encephalomalacia. Unfortunately, it is just as scary as it sounds. This was caused by the massive amounts of swelling and inflamation his entire body endured, when he got so sick from the infection that nearly killed him. He said a large portion of his brain has dilapidated and is irreparable. What does this mean? He said it is too early to tell how disabled Drake will be. They dont even know whether it is progressing or has stopped. He compared this to someone who has had a stroke; when they lose motor skills, they never come back. Only with Drake, we don't know which ones he will ever have.
We don't really know what to do, other than continue to support our children and keep the faith. There is just such an immeasurable amount of weight on our hearts right now.
Please keep this little guy in your hearts and prayers!
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