Kennedy was set to give CPAP another try today, but they decide to wait another day and lower her settings on the ventilator again. She was having some heart rate drops and saturation drops too. We also noticed that she looked a little pale so the doctor checked her blood. We found out that she needed a blood transfusion, and, on a brighter note, that she did not show any signs of an infection (which was another worry). They had to stop her feeds today for the transfusion, but they will start back up slowly once the transfusion completes. She had her first tantrum today, she was crying and wiggling like crazy. I changed her diaper and the nurse suctioned her tube. I wrapped her up and rubbed her head until she calmed down and fell back asleep. We rarely see her upset so this was definitely a first. She even had a little tear which is something they could not produce before. It broke my heart to see her so upset. I'm sure this was the first of many tantrums to come.
Drake still looks good. The infectious disease doctors have changed for the rest of the week and this doctor did not order a spinal tap. Hopefully this means he won't need one. Another good note for Drake is that his doctor said his heart murmur is much less noticeable. This indicates that his PDA is closing on its own! Let's hope and pray this is the case so he doesn't have to have a surgery.
Pictures:
1) Drake
2) Kennedy
3) Kennedy
4) Drake
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