Someone I look up to taught me the lesson about the importance of celebrating the small wins. I am Drake and Kennedy's coach in the game of life so I had a long discussion with him and told him to focus on the small wins. In the game of football, you want to focus on celebrating the three yard plays. If every time you snap the ball you get three yards, you are guaranteed to get a first down. With enough three yard plays, you will eventually get a touchdown.
Team Drake got a first down today...about 1cc of urine out of the catheter!!!! This is not the touchdown we ultimately want to help us win the game, but it is a huge step in the right direction.
Like all of our days so far in the NICU, today was still a very long day. My fatherly duties, knowing that I am the advocate for my helpless children, I continue to drive my determination to make sure Drake is getting everything that medical science has to offer. I spoke to the doctors letting them know that I am requesting a consultation visit with the nephrologist of my choice, I asked them to set this up. That nephrologist happens to be on vacation until next week and they said we could set something up then. I pushed the fact that we needed someone to talk to today. Don't get me wrong, the doctors here are wonderful and very smart, Annie and I just need to know that we have exhausted all resources. Finally getting to speak to someone, we had a long conversation about what specifically is going on with his kidneys. They reassured us that the NICU doctors are doing everything in their power and all the right things. We just have to keep hope that the kidneys will start working before we run out of time.
The small amount of urine gives us a new spark of hope that I cannot explain. It means the kidneys actually did filter something...which is a whole lot more than nothing. The new medicine seems to have helped kickstart something. Instead of giving him another one time dose, they are beginning a consistent drip through the IV to provide sustained release.
Tonight could actually be the winning TOUCHDOWN!
Pictures: Kennedy and mommy with our wedding rings, Annie and her dad with Drake, Mommy and daddy during kangaroo treatment
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