This afternoon and evening have continued to go without any additional flow of urine after the 1cc we got last night. I feel very strongly about a message that was meant to shine some light of hope upon us.
Almost to the second, I received a text message picture from my mother while Annie received one from a dear friend. Both pictures were of Double Rainbows...one set was shining down over the hospital and the other shining down near our home 90 miles away. These two pictures have to represent how the almighty is looking down upon us, both at the hospital where we are and simultaneously where we live. Both messages we received said "A double rainbow for Drake and Kennedy." This has to be a message of hope and not sheer coincidence.
Drake is remaining stable and continuing to fight very hard. His vitals are staying in check, however the swelling continues throughout his body. The doctors keep fighting for Drake, putting their heads together they have come up with a combination of things. They are going to give him some of mommy's milk, some other proteins, and higher doses of the the two diuretics. This should trick his body into drawing more blood into his vascular system and into the kidneys. Confusing to me, but then again I'm not a doctor. If there is no urine by tomorrow morning, there is still the oral diuretic they can try.
Kennedy had her first bath tonight. This was quite an experience for her and mommy both...arms and legs were going in all different directions. She was not too excited about the bath until they got to her head. She completely relaxed once she was wrapped in a warm blanket. See that wasn't so bad.
We are surrounded by such great people. Starting with the doctors and nurses, everyone cares about their well being. Nurses that have had a shift with them continually come in checking in on them even when they are with a different patient. The doctors call on their day off to see how they are and there is even a doctor that will be coming in on Monday during her day off just to see how they are.
Then there is family...What more can we say. Both sides go way out of their way to do anything and everything, just to make sure we can spend as much time with our babies as possible.
Friends...our other family. We have such great friends that drive long distances just to bring care packages and mail all to help us out and catch a few minutes to say they care.
Strangers...wow! What a wonderful world it can be when everyone comes together to support a family and sick children. The kind words, prayers, and ideas you all send are wonderful.
You all shine a light of hope into our lives...Thank you to everyone!
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Saturday, July 14, 2012
Shining Lights of Hope
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