The title of this post is meaningful in multiple facets. For one, Annie and I feel like we can quit holding our breath for this moment to celebrate these first downs Drake and Kennedy have been making. Second, Drake is handling the new ventilator settings. And lastly, Kennedy will be trying her hand at CPAP again very soon.
Things really haven't changed much from earlier today. Drake is staying strong, letting everyone know he can do this new ventilator thing...and he is doing well, when you leave him alone. This is ok, he has earned the right to be fussy...have you gone seven days without going to the bathroom? The lumbar puncture has no further update yet. This morning, the doctor told us that it could be today or tomorrow. It will also be dependent on what his back looks like and whether or not they can easily access the vertebrae for the procedure. Best news today, the nurse told us that if he does well on the ventilator tonight and tomorrow then he could kangaroo as early as tomorrow afternoon. There is one excited mommy in the room! Excited daddy too, because that would mean that I could finally get to hold Kennedy.
Kennedy is still eating a lot...and making some dirty diapers for me to change. They decided to give her a little more volume than what she has been getting, but they have a special pump that feeds her over an hour and a half to keep her from spitting up. They said one of the problems they sometimes see, is that once the volumes get high for their weight, it is hard for the babies to keep it down. So far, she seems to be dong very well. Another CPAP attempt will be sometime this week. She is a determined girl and has the "never give up" attitude like her brother, so I feel that she is going to get it this time. Besides, she is getting very strong and may pull her tube out of her mouth anyway.
Pictures: YES, there is a picture of Drake. Drake and Kennedy on their one month stepping stone yesterday.
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